PCD Medical Board Meeting 2022
Jun 10, 2022 | News
Jun 10, 2022 | News
May 16, 2022 | News
Apr 11, 2022 | News
Jul 22, 2021 | News
Although you may recognise her as our Chair, Lucy is studying a Masters in Social Research at the University of York. As part of her research, Lucy...
Nov 22, 2021 | News, Events
Airway clearance techniques (commonly referred to as “breathing exercises”) are used to help people with bronchiectasis manage their daily symptoms...
Nov 22, 2021 | News
Researchers from the University of Bern in Switzerland in collaboration with UK researchers and members of PCD Support UK are studying opinions of...
Oct 29, 2021 | News, Events
Join us on Wednesday 3rd November for the newest instalment of PCD Live: "That's rare, I doubt you have it" with Lucy Dixon. Sign up on Eventbrite...
Oct 15, 2021 | News
This PCD Awareness Month sees the launch of a vibrant new name and new look for PCD Support UK! The new name represents our vision to be an...
Oct 15, 2021 | News
We are pleased to announce a free and online virtual activity camp for children and young people!
Who can take part in Camp in the Cloud?...
Sep 29, 2021 | News
After being awarded a BEM in the Queen’s New Year Honour’s list in December 2020, Fiona received her medal earlier this month!
Fiona says: “We...
Jul 22, 2021 | News
On July 13, PCD Support UK co-signed the joint letter sent by National Voices to Prime Minister, Boris Johnson, asking him to urgently reconsider...
Jun 15, 2021 | News
You are warmly invited to our AGM and Q&A this Saturday 19th June, 10.30-12pm.
Join us for this year’s AGM which celebrates 30 years of the PCD...
Jun 13, 2021 | News
Call for participants to complete an online survey.
We would appreciate if parents of children with PCD (younger than 6 years of age) could help...
May 27, 2021 | News
Is fatigue a symptom of your/your child’s lung condition? If so, The University of Liverpool is looking to talk to the following individuals:...
Apr 30, 2021 | News
As part of Guy’s and St Thomas’ NHS Foundation Trust, Royal Brompton and Harefield hospitals continue to work together with their colleagues,...
Apr 13, 2021 | News
Ramadan is a month within the Islamic calendar. The importance of Ramadan is that it is the month in which the Quran was revealed to Prophet...
Feb 23, 2021 | News
The PCD Family Support Group is excited to share two opportunities to get involved with PCD research. The first is available to 18-30 year olds and...
Jan 23, 2021 | News
Please see our newest update on children with PCD and COVID-19: Children, PCD and COVID-19
Dec 30, 2020 | News
Please join us in congratulating Fiona Copeland, our former Chair, in being awarded a British Empire Medal (BEM) for her tireless work for the PCD...
PCD Medical Board Meeting 2022
Introducing PCD Research!
Ciliopathy Alliance 10th Annual General Meeting
Research Opportunity Alert!
Get involved in physio research!
Your opinions about PCD research: looking for volunteers!
PCD Live: “That’s rare, I doubt you have it” with Lucy Dixon
New look, new direction for PCD Support UK!
Family Camp in the Cloud!
Investiture Ceremony for Fiona Copeland
Joint letter to the Prime Minister
PCD Family Support Group AGM and Q&A
Call for participants! Quality of life survey
Get involved with research into fatigue and PCD!
Help us improve care for patients
Ramadan during COVID-19 (for people with PCD)
PCD physiotherapy research opportunities
COVID-19 and children with PCD
New Year’s honour for Fiona Copeland