PCD Medical Board Meeting 2022
Jun 10, 2022 | News
May 16, 2022 | News
Apr 11, 2022 | News
Jul 22, 2021 | News
Although you may recognise her as our Chair, Lucy is studying a Masters in Social Research at the University of York. As part of her research, Lucy...
Nov 22, 2021 | News, Events
Airway clearance techniques (commonly referred to as “breathing exercises”) are used to help people with bronchiectasis manage their daily symptoms...
Nov 22, 2021 | News
Researchers from the University of Bern in Switzerland in collaboration with UK researchers and members of PCD Support UK are studying opinions of...
Oct 29, 2021 | News, Events
Join us on Wednesday 3rd November for the newest instalment of PCD Live: "That's rare, I doubt you have it" with Lucy Dixon. Sign up on Eventbrite...
Oct 15, 2021 | News
This PCD Awareness Month sees the launch of a vibrant new name and new look for PCD Support UK! The new name represents our vision to be an...
Oct 15, 2021 | News
We are pleased to announce a free and online virtual activity camp for children and young people!
Who can take part in Camp in the Cloud?...
Sep 29, 2021 | News
After being awarded a BEM in the Queen’s New Year Honour’s list in December 2020, Fiona received her medal earlier this month!
Fiona says: “We...
Jul 22, 2021 | News
On July 13, PCD Support UK co-signed the joint letter sent by National Voices to Prime Minister, Boris Johnson, asking him to urgently reconsider...
Jun 15, 2021 | News
You are warmly invited to our AGM and Q&A this Saturday 19th June, 10.30-12pm.
Join us for this year’s AGM which celebrates 30 years of the PCD...
Jun 13, 2021 | News
Call for participants to complete an online survey.
We would appreciate if parents of children with PCD (younger than 6 years of age) could help...
May 27, 2021 | News
Is fatigue a symptom of your/your child’s lung condition? If so, The University of Liverpool is looking to talk to the following individuals:...
Apr 30, 2021 | News
As part of Guy’s and St Thomas’ NHS Foundation Trust, Royal Brompton and Harefield hospitals continue to work together with their colleagues,...
Apr 13, 2021 | News
Ramadan is a month within the Islamic calendar. The importance of Ramadan is that it is the month in which the Quran was revealed to Prophet...
Feb 23, 2021 | News
The PCD Family Support Group is excited to share two opportunities to get involved with PCD research. The first is available to 18-30 year olds and...
Jan 23, 2021 | News
Please see our newest update on children with PCD and COVID-19: Children, PCD and COVID-19
Dec 30, 2020 | News
Please join us in congratulating Fiona Copeland, our former Chair, in being awarded a British Empire Medal (BEM) for her tireless work for the PCD...
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Introducing PCD Research!
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Ciliopathy Alliance 10th Annual General Meeting
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Research Opportunity Alert!
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Get involved in physio research!
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Your opinions about PCD research: looking for volunteers!
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PCD Live: “That’s rare, I doubt you have it” with Lucy Dixon
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New look, new direction for PCD Support UK!
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Family Camp in the Cloud!
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Investiture Ceremony for Fiona Copeland
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Joint letter to the Prime Minister
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PCD Family Support Group AGM and Q&A
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Call for participants! Quality of life survey
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Get involved with research into fatigue and PCD!
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Help us improve care for patients
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Ramadan during COVID-19 (for people with PCD)
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PCD physiotherapy research opportunities
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COVID-19 and children with PCD
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New Year’s honour for Fiona Copeland
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