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Participants needed for transitioning study

Jul 12, 2024

This project aims to explore transition from paediatric to adult healthcare NHS services for individuals living with PCD. Online interviews will be conducted with individuals who have transitioned through NHS services.

Interviews will also be conducted with those who have supported an individual through transition.

This research will generate an insight into the lived experiences of transition through NHS services and allow for recognition of support needs when transitioning through services.

 

Inclusion Criteria:

                - 18 years old and over,

                - Diagnosed with Primary Ciliary Dyskinesia (PCD)

                - Transition from Paediatric to Adult Care Services with the NHS OR supported an individual through transition. 

 

Exclusion Criteria: 

                - Unable to complete an interview in English.

Please contact Kristina Hay (MSc Genetic and Genomic Counselling at Cardiff University) on [email protected] for more details and to take part.

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