Recent research suggests the need to look into the psychological aspects that may be present as a result of rare diseases. Therefore, postgraduate research by Canterbury Christ Church University is being conducted on Primary Ciliary Dyskinesia and the impact it has on psychological aspects such as well-being, emotions, behaviour and self-esteem.
Participants should not take part if they feel the study will cause distress or interfere with any medical or psychological treatment.
Am I eligible to take part?
You need to be:
- 18 years or over,
- have a diagnosis of PCD,
- able to understand and speak English,
- willing and able to take part in an online interview.
How can I take part?
If you would like to know more about this study and how to get involved, please contact Karthika (researcher) via [email protected].
Karthika is an MSc student at Canterbury Christ Church University under the supervision of Dr Emma Denby ([email protected])