“There are no absolutes. There’s a big spectrum in PCD” – Amanda Harris talks to Rarely Heard
“I’m always saying to kids ‘you’re not PCD…you’re Silvia, who happens to have PCD. So, what do you enjoy? You like swimming? Do swimming then! You like running? Go running then! […] Doing physio is to enable you to do the stuff that you want to do.”
Join Clinical Nurse Specialist, Amanda Harris, as she talks to Phillipa from Rarely Heard about her career working in PCD and CF.
In this insightful podcast, she talks about the power of partnerships in PCD, and how she supports children and young people to live their best lives with this disease. In this interview, we get a sneak peek into her remarkable career, as Amanda talks about some of her most memorable moments as a PCD nurse and what barriers remain in PCD research.
Amanda’s enthusiasm for supporting children, young people, and families to make PCD fit into their lives is a reminder of the lifechanging impact she and other PCD staff have on our community.
Did you know our vice-chair, Abdullah Ihsan also spoke with Rarely Heard about his experiences with PCD as a British-Pakistani Muslim? Full story link.
Listen in full through the link below or search for "Rarely Heard" wherever you get your podcasts.
Rarely Heard Podcast Link - Amanda Harris
.png)