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Committee

Lucy Dixon

Chair

Lucy began volunteering with PCD Support UK in 2014 and became Chair in June 2020. Diagnosed with PCD (situs inversus) at 4 years old, Lucy’s first experience of specialist care for PCD was as a student at the University of Cambridge. At 20, she had a major lung operation and, having not met anyone else with the condition before, contacted PCD Support UK. She strongly believes in the importance of bringing the PCD patient community together to help solve the isolation felt by having a rare disease like PCD.

Lucy gives public talks to students, doctors and other organisations about PCD, she represents PCD Support UK on a number of research boards (including BEAT-PCD Advisory Board) and alongside the rest of the committee, she helps people and families affected by PCD to access support.

Outside of volunteering with PCD Support UK, Lucy’s professional career has focussed on education and health inequality. In 2020, she became a Black Heart Foundation Scholar and a recipient of the Snowdon Trust Master’s Scholarship, who supported her to study a Masters in Social Research at the University of York. She now works full time as a health researcher in the NHS. In her spare time, Lucy is passionate about binge-watching Gilmore Girls, listening to live music and going home to West Wales.

Abdullah Ihsan

Treasurer

Abdullah has been involved with the PCD Support UK since July 2019. He was diagnosed with PCD (Kartagener's syndrome) at the age of 9, however there was no treatment plan in place until he was 16 years old. Since joining the committee he has attended various events to promote PCD and intends to support future fundraising events.

Abdullah is currently a data analyst at a transport and logistics company called Maersk, where he started as an apprentice. His hobbies include going to the gym, watching movies, and eating out as he loves trying new foods.

Katie Dexter

Communications

Katie joined the committee in July 2019. She was diagnosed with PCD in her late teens after many years of misdiagnosis and now lives near Southampton under specialist PCD care. 

Katie manages the communications strategy for PCD Support UK. She keeps the website up-to-date and she writes and designs posts for social media. She works hard to bring together the research and patient communities through initiatives such as ‘PCD Live.’ Due to her scientific background, Katie adores attending talks and conferences on behalf of the charity.

Outside of PCD Support UK, Katie has a PhD in Physics and works in the Biomedical Imaging Unit at the University of Southampton. She works on world-leading research through her expertise in micro-CT and optical imaging. In her free time, Katie enjoys crochet, boxing, and board games.

Myra Tipping

Adult Representative

Myra is the adult contact on the committee. She was Secretary for the group from 2006 to 2020, and has represented the PCD support group at many events. She has PCD herself, and was diagnosed when she was 42 years of age.

Myra used to work as a teacher and is a keen bridge player. She is a member of two book clubs and her hobbies also include, yoga, music, theatre and film.

Poonam Sodha

Adult Representative

Poonam is one of the contacts for adults with PCD. She was diagnosed herself at the age of nine after being told her symptoms were asthma related. Poonam’s professional background is in data visualisation and analytics; she currently works as a Business Data Analyst for Save the Children and uses her position to encourage discussions on racial inequity in the international non-profit sector.

In her free time, she enjoys learning new languages, having recently become Level 1 and 2 qualified in British Sign Language. Poonam also enjoys travelling and playing the saxophone.

Tasha Bellwood

Parent Representative

Tasha is one of the contacts for parents of children with PCD.  Her son was diagnosed in 2021 at the age of 11, having had many years of ear problems and a constant crackly cough. They live in West Sussex and are jointly cared for by the Royal Brompton and Brighton Hospital. Although relatively new to the world of PCD, Tasha is thoroughly committed to raising awareness, and increasing the understanding of PCD. She would be happy to talk to any parents going through this early stage of diagnosis, and beyond. 
 
Outside of PCD Support UK, Tasha works full time in Procurement as a Buyer, has a lovely little Cavapoo who is Alfie’s little guardian, and is a single mum! Her spare time usually involves being outside; watching her son play football or playing football with him, beach walks, and hill walks.  And she loves DIY!

Katie Vance

Parent Representative

Katie’s 9 year old daughter was diagnosed with PCD when she was 3 years old. Katie has been involved with PCD Support in Scotland since 2017 and delighted to join the UK committee as the role of Parent rep this year.

She brings her experience of being a Mum, Primary Teacher, Physiotherapy device developer and a love of all things fun and creative to the role.

Gary Tipping

Merchandise

Gary has been a committee member since 2006. He has always been a general committee member, assisting wherever he can, and attending events representing the family support group. Gary is the contact for fund raisers requiring PCD branded equipment.

Gary’s hobbies include building sports cars, motorsport and being an active member of several car clubs. He has a great interest in music and along with his sons, he runs a small record label specialising in Americana music.

Kate Rowe-Ham

Fundraising

Kate Rowe-Ham's son, Rupert was diagnosed with PCD in 2021 aged 5 after numerous visits to hospital. She always knew that something wasn't quite right with his daily coughs, continually runny nose and ear aches and pushed for more investigations. It is because of this Kate is really keen to help raise awareness and much needed funds for PCD support. She wants to ensure there is help for other families and in raising awareness this could lead to earlier diagnosis.

Kate is a Women's Health Coach with a special interest in menopause fitness and nutrition. Her love of exercise has had a massive impact on Rupert who enjoys the outdoors, running, football and is thankfully incredibly active which helps him manage his symptoms, most of the time.

Tia Barrie

Secretary

Tia joined PCD Support UK in 2022. Tia wanted to get involved with the charity to learn and support her partner, who has PCD, but also because Tia has a passion for Equality, Diversity, and Inclusion (EDI) work.

Tia works as a Recruitment Resourcer for a Managed IT Company called Littlefish and also acts as a volunteer on the internal EDI team, which helps to strengthen their knowledge and ensure a fair and equal hiring process for all.

Tia spends their spare time reading and creating digital drawings, as well as exploring new places with their partner.

 

 

Volunteers

We are immensely grateful for all those that give their time to assist with the running of our charity. Amongst many others, we'd like to highlight the following persons for their support:

Fiona Copeland, Patricia Goggin, Charlotte Kewell, Callum King, Sophie Nakford, Ella Proudley, Susi Shanks, Nhu Tran