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Hello! We are PCD Support UK

We are the UK’s dedicated charity supporting those affected by Primary Ciliary Dyskinesia (PCD), championing vital research into this rare disease since we began over 30 years ago.

Primary Ciliary Dyskinesia (PCD) is a rare genetic disease affecting 1 in 7,500 people in the UK. It is caused by abnormal motile cilia (motile cilia are the microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD can affect the lungs, nose, sinuses, ears and fertility.

Living with PCD

PCD affects1 in 7,500 people in the UK

At PCD Support UK, we put our patient community first. We are a team of volunteers whose mission it is to support families and individuals affected by PCD. We also work closely with our clinical professionals, championing research to improve the lives of people with PCD.

We worked hard to secure a national PCD diagnostic service in 2006, and in 2012 got our a Paediatric Management Service for PCD children across England and Wales. In 2019, we successfully lobbied for NHS funding for an adult service, which is now up and running across the four specialist centres in England.

We continue to work towards obtaining equitable care for PCD patients across the UK.

  • PCD impacts a persons quality of life

    It causes frequent respiratory infections, requires substantial daily treatments, and every individual is affected differently.

  • £50 buys a toy medical kit

    to support children with PCD who have a phobia of hospitals

  • £100 provides specialist support 

    to help a person with PCD apply for benefits such as Personal Independence Payment (PIP)

  • £150 buys an exercise bike

    to support a person with PCD with their physiotherapy

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