Welcome to our website which provides an up-to-date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves recurrent infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a ‘bronchiectasis’.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment for people with PCD is regular chest physiotherapy to clear secretions from the lungs and targeted antibiotics to treat infections. PCD can affect people in a variety of different ways, but when managed well, most with the condition lead relatively normal lives.
We hope you find this website useful and please do contact us if you have any comments or suggestions.
At our virtual AGM this year, our new chair, Lucy Dixon, spoke about wanting to keep growing our PCD community so that more people with the condition can feel connected even despite the additional barriers that Covid-19 has posed. We were therefore thrilled when Dan Hawkins approached us about an idea called PCD-Connect, which is
PCD Day Q&A Session Transcript We are delighted to share the Q&A session held with our PCD specialists on 27th June at our AGM is now available for download here. This includes an update on facemasks and is accurate from 10/07/2020. As always, this advice is likely to change and evolve as the situation in
Poster Competition 2020 Results!
PCD Poster Competition 2020 This year we held a competition to design an educational poster for people with PCD on one of these themes: 1) Washing your hands 2) The importance of physiotherapy and exercise 3) PCD and Me The committee were extremely impressed with the quality and amount of poster entries that we received