Hello! We are
PCD Support UK
We are the UK’s dedicated charity supporting those affected by Primary Ciliary Dyskinesia (PCD), championing vital research into this rare disease since we began nearly 30 years ago.
Having worked hard to establish a national PCD diagnostic service in 2006, followed by a Paediatric Management Service for PCD patients across England and Wales in 2012 we subsequently successfully lobbied for NHS funding for an adult service, now up and running since 2019.