Hello! We are
PCD Support UK

We are the UK’s dedicated charity supporting those affected by Primary Ciliary Dyskinesia (PCD), championing vital research into this rare disease since we began nearly 30 years ago.

Having worked hard to establish a national PCD diagnostic service in 2006, followed by a Paediatric Management Service for PCD patients across England and Wales in 2012 we subsequently successfully lobbied for NHS funding for an adult service, now up and running since 2019.

Living with PCD

PCD affects 1 in 15,000 people in the UK

Today we tackle the latest challenges presented by this rare disease, putting our patient community
first. We also work in close partnership with our clinical professionals, championing research to improve the lifestyle of those affected by PCD.

Primary Ciliary Dyskinesia (PCD) is a rare genetic disease affecting 1 in 15,000 people in the UK. It is caused by abnormal motile cilia (motile cilia are the microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD can affect the lungs, nose, sinuses, ears and fertility.


Physiotherapy and targeted antibiotics


Diagnosis is only made in specialist units

Your Stories

Share your stories – please get in touch

Hello, we are PCD Support UK

We’re here for those affected by PCD. We talk about PCD as widely as possible and we champion research to improve its diagnosis, management and treatment.

PCD affects 1 in 15,000 people

It’s a rare, genetic disease associated with cilia abnormalities.

50% of people with PCD have their
organs in mirror position

PCD can affect the ears, nose, lungs, sinuses and fertility.

What is PCD?