Welcome to our website which provides an up-to-date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves recurrent infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a ‘bronchiectasis’.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment for people with PCD is regular chest physiotherapy to clear secretions from the lungs and targeted antibiotics to treat infections. PCD can affect people in a variety of different ways, but when managed well, most with the condition lead relatively normal lives.
We hope you find this website useful and please do contact us if you have any comments or suggestions.
PCD Physio Research Opportunities!
PCD Physiotherapy Research Opportunities 26 February 2021 CALL FOR PARTICIPANTS The PCD Family Support Group is excited to share two opportunities to get involved with PCD research. The first is available to 18-30 year olds and the second is for 18+ year olds. If you have any questions or concerns about these opportunities,
Covid-19 and Children with PCD
Please see our newest update on children with PCD and covid-19: Children, PCD and Covid This update contains: 1) Update from the Royal College of Paediatrics and Child Health and Healthier Together 2) Results from PCD and Covid-19 study, specific to children 3) Mental health and wellbeing: an update and resources Please do get involved
PCD Shielding Update
Please click here to download the latest PCD Shielding Update from the PCD Family Support Group UK. This is correct as of 05/01/2021.