Welcome to our website which provides an up-to-date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves recurrent infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a ‘bronchiectasis’.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment for people with PCD is regular chest physiotherapy to clear secretions from the lungs and targeted antibiotics to treat infections. PCD can affect people in a variety of different ways, but when managed well, most with the condition lead relatively normal lives.
We hope you find this website useful and please do contact us if you have any comments or suggestions.
Poster Competition 2020 Results!
PCD Poster Competition 2020 This year we held a competition to design an educational poster for people with PCD on one of these themes: 1) Washing your hands 2) The importance of physiotherapy and exercise 3) PCD and Me The committee were extremely impressed with the quality and amount of poster entries that we received
PCD AGM and Q&A 2020
PCD AGM and Q&A – 27th June 2020 (online) Full video of our AGM is now available on YouTube: Strange times and saying goodbyes The 27th June 2020 was an unforgettable moment for the PCD Family Support Group for two reasons: Firstly, we bid farewell to our sensational chair of 17 years, Fiona Copeland.
Latest Update from the National Leads for PCD 22nd June 2020
Update Statement from the National leads of the children and adult PCD centres in England – 22nd June 2020 Advice on what to do at the end of the initial ‘shielding’ period at the end of June CONTEXT: We continue to review the available data on COVID-19 and we remain fortunate that in children