Latest News

Participants needed for transitioning study

Oct 6, 2023 | News

All good things

Aug 31, 2023 | News

PCD Support UK goes to Alton Towers!

Jul 27, 2023 | News

What are your research priorities?

Jun 30, 2023 | News

Physio packs for children with PCD

Jun 30, 2023 | News

PCD Support UK AGM

Jun 1, 2023 | News, Events

PCD Live: Stepping up to the plate

May 23, 2023 | News, Events

Participants needed for psychological study

May 17, 2023 | News

PCD Live: Your Mental Health

Apr 14, 2023 | News, Events

Spring has sprung!

Mar 24, 2023 | News

“There are no absolutes. There’s a big spectrum in PCD” – Amanda Harris talks to Rarely Heard

Mar 24, 2023 | News

NEW! Rarely Heard podcast: “People in my family didn’t think it was real or fully understand”

Mar 24, 2023 | News

New Phase 1 Clinical Trial for PCD

Mar 22, 2023 | News

Aerobika Research Opportunity

Mar 22, 2023 | News

PCD Live: Antibiotics on Tues 21st March!

Mar 17, 2023 | News, Events

PCD Live: Your Genes have style recording now available!

Feb 16, 2023 | News

PCD Support UK introduces £100 one-off payment to help those in need

Feb 3, 2023 | News

Research update: Reflecting on the experience of entering adulthood with PCD

Feb 2, 2023 | News

Ciliopathy Alliance UK AGM

Feb 1, 2023 | News

Win £50 for answering our PCD Patient Survey!

Jan 9, 2023 | News

Royal Brompton Hospital: Feedback Wanted

Jan 4, 2023 | News

Call for participants: Quality of Life Questionnaire

Nov 8, 2022 | News

PCD Medical Board Meeting 2022

Jun 10, 2022 | News

Introducing PCD Research!

May 16, 2022 | News

Ciliopathy Alliance 10th Annual General Meeting

Apr 11, 2022 | News

Research Opportunity Alert!

Jul 22, 2021 | News

Although you may recognise her as our Chair, Lucy is studying a Masters in Social Research at the University of York. As part of her research, Lucy...

Get involved in physio research!

Nov 22, 2021 | News, Events

Airway clearance techniques (commonly referred to as “breathing exercises”) are used to help people with bronchiectasis manage their daily symptoms...

Your opinions about PCD research: looking for volunteers!

Nov 22, 2021 | News

Researchers from the University of Bern in Switzerland in collaboration with UK researchers and members of PCD Support UK are studying opinions of...

PCD Live: “That’s rare, I doubt you have it” with Lucy Dixon

Oct 29, 2021 | News, Events

Join us on Wednesday 3rd November for the newest instalment of PCD Live: "That's rare, I doubt you have it" with Lucy Dixon. Sign up on Eventbrite...

New look, new direction for PCD Support UK!

Oct 15, 2021 | News

This PCD Awareness Month sees the launch of a vibrant new name and new look for PCD Support UK! The new name represents our vision to be an...

Family Camp in the Cloud!

Oct 15, 2021 | News

We are pleased to announce a free and online virtual activity camp for children and young people! Who can take part in Camp in the Cloud?...

Investiture Ceremony for Fiona Copeland

Sep 29, 2021 | News

After being awarded a BEM in the Queen’s New Year Honour’s list in December 2020, Fiona received her medal earlier this month! Fiona says: “We...

Joint letter to the Prime Minister

Jul 22, 2021 | News

On July 13, PCD Support UK co-signed the joint letter sent by National Voices to Prime Minister, Boris Johnson, asking him to urgently reconsider...

PCD Family Support Group AGM and Q&A

Jun 15, 2021 | News

You are warmly invited to our AGM and Q&A this Saturday 19th June, 10.30-12pm. Join us for this year’s AGM which celebrates 30 years of the PCD...

Call for participants! Quality of life survey

Jun 13, 2021 | News

Call for participants to complete an online survey. We would appreciate if parents of children with PCD (younger than 6 years of age) could help...

Get involved with research into fatigue and PCD!

May 27, 2021 | News

Is fatigue a symptom of your/your child’s lung condition? If so, The University of Liverpool is looking to talk to the following individuals:...

Help us improve care for patients

Apr 30, 2021 | News

As part of Guy’s and St Thomas’ NHS Foundation Trust, Royal Brompton and Harefield hospitals continue to work together with their colleagues,...

Ramadan during COVID-19 (for people with PCD)

Apr 13, 2021 | News

Ramadan is a month within the Islamic calendar. The importance of Ramadan is that it is the month in which the Quran was revealed to Prophet...

PCD physiotherapy research opportunities

Feb 23, 2021 | News

The PCD Family Support Group is excited to share two opportunities to get involved with PCD research. The first is available to 18-30 year olds and...

COVID-19 and children with PCD

Jan 23, 2021 | News

Please see our newest update on children with PCD and COVID-19: Children, PCD and COVID-19

New Year’s honour for Fiona Copeland

Dec 30, 2020 | News

Please join us in congratulating Fiona Copeland, our former Chair, in being awarded a British Empire Medal (BEM) for her tireless work for the PCD...