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Your Stories

Sharing experiences

We hope you enjoy watching these stories of people with Primary Ciliary Dyskinesia (PCD) sharing their experiences. If you would like to share your story, please get in touch.

PCD: All the questions you never asked

Lucy, Katie, Abdullah, Euan, Gregor, and Poonam are all adults with Primary Ciliary Dyskinesia (PCD). We asked them all the questions you wanted to but never have, including “What’s your most embarrassing PCD moment?”



Being diagnosed with PCD: Sylvie’s Story

Watch Sylvie explain how she was diagnosed with Primary Ciliary Dyskinesia.