Lucy has been involved with the PCD Family Support Group since 2014, firstly as an adult representative, before taking on the role of Chair in June 2020. Diagnosed with PCD (Kartagener’s) when she was 4 years old, Lucy has raised awareness of the condition from a young age, as a demonstration patient in medical exams for student doctors. Nowadays, she talks to students, clinicians and other organisations about PCD and supports patients and families affected by PCD, alongside the rest of the committee.
Outside of volunteering with the PCD Family Support Group, Lucy’s professional background focuses on addressing inequality in both education and health. She is a Snowdon Master’s Scholar (2020-2021) and a Black Heart Foundation Scholar (2020-2021) and will be studying for a masters in Social Research at the University of York from September 2020. In her spare time she enjoys exploring her local area of West Wales, as well as learning new languages, travelling, and live music.