Provide the school with as much information as possible about PCD, they can contact the PCD Family Support Group if they need any further clarification

  1. It is important for you to choose a school that meets your child’s educational and welfare needs. If possible find a school that is close to home or is easy for you to collect them if they are poorly or need to attend a hospital appointment.

Before your child starts at the school arrange to meet the headteacher and explain how the condition affects your child. You should provide the school with a PCD leaflet (contact us if you would like to be sent one). You could also tell the school that they can contact the PCD Family Support Group if they need any further information.

If your child requires physiotherapy at school find out if the school can do this. Then ask your Respiratory Nurse Specialist to arrange a school visit with a physiotherapist to explain what is required. If they cannot, ask your physiotherapist to review your current physio routine to see if any adaptations can be made.

These are the some of the questions you may want to ask the school:

  • Find out if the school is willing to dispense medication.
  • What procedures are in place to ensure your child gets their medication.
  • If your child has hearing loss, it may be beneficial to ask if they could sit at the front of the class.
  • Are they able to access a bin near their desk to dispose of their tissues.
  • Can they leave the room to blow their nose, or go to the toilet to clear their chest?
  • Can your child not sit near the window with the sun on his/her back? This can cause overheating and then vomiting!
  • Does your child have special educational needs? If so do they require statementing? For more information on statementing click on this link.
  • Frequently missing school can have a significant impact on your child’s progress. Find out what procedures can be put in place for them to catch up. You could also ask whether it would be possible to send work home from time to time or whether teachers can record their lessons for your child to watch from home.

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.