Remember, giving IVs at home is an option. Hospital care is still available if you need it.

You will need a cool, clean, dry shelf or cupboard out of reach of children and pets to store your drugs and equipment. Some drugs may need to be stored in a fridge – your pharmacist will advise you of this. Simple, user-friendly instructions should be issued to back up your teaching programme by your nurse or doctor. This should contain a section on dealing with problems.

Arrangements will be made for enough equipment to be issued to complete the course. A ‘sharps bin’ is required for safe disposal of needles, syringes and other sharp items and this must be sealed on completion. Information on disposal and/or collections of the box and any other items of equipment will be given by your nurse or doctor.

Monitoring and follow-up of home IV courses may involve home visits, phone calls or clinic appointments. Some drugs require a blood test to check dosage is correct; again, you will be advised of this.

You will need to be available for any follow-up care necessary to ensure treatment is both safe and effective. Reactions to drugs can occur, which is why the first one or two doses of any new drug are given in hospital under medical supervision.

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.