It is important once a week (to avoid unnecessary chest infections) that you sterilise your adjuncts as per the manufacturer’s instructions.

Various devices can be used to increase the efficacy of physiotherapy, and can also help with compliance if there is reluctance to do it.

Oscillatory and positive expiratory pressure (PEP) devices such as the Pari PEP or Astra PEP help mobilise and move secretions. This positive pressure on breathing out helps to ‘splint’ the airways open, enabling more air to get in and out of the lungs increasing the efficiency of mucous clearance.

The Acapella Choice and Flutter are oscillatory PEP devices which provide both resistance and vibration as you exhale. It may be necessary to hold the cheeks to make sure that the vibration is in the lungs and not the cheeks. An Acapella can be used in the postural drainage position or the seated position. The Flutter is easiest used in a seated position.

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Using the Flutter: The user simply exhales a number of times into the mouthpiece of the Flutter – causing a steel ball to vibrate in the casing. The pressure of blowing against this steel ball, and the vibrations that it makes travel back into the lungs, where they start to have a positive effect. The flutter can really only be used in the sitting position because it needs to be held upright.

These vibrations affect all the branches of the airways, and like “shaking apples from the branches of a tree”, the mucus is loosened. Whilst this is happening, the changes in air pressure that makes the steel ball move are both keeping small airways open, and allowing air to move throughout the lungs. As a result of this movement, mucus is moved out from where it was previously stuck, into the larger airways and to where it can be coughed out. The Acapella has a similar effect but uses a seesaw mechanism to cause the vibration instead of a ball.

PEP devices (Positive Expiratory Pressure) help keep the airways open by blowing against resistance. It therefore make it easier to cough up the mucus.

Ask your physiotherapist if you can try any of these adjuncts.

Please note it is important that a physiotherapist assesses which device or technique may be most appropriate for you and teaches you how to use it. As every person with PCD is an individual it is important to find the right technique to suit you.

The physiotherapist can also help you work out how to fit your physiotherapy around your lifestyle.

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.