Your limits are different, however by the time you are a young adult, I think most of us know that our body will automatically tell us when we have done too much or indeed not enough

It is important to recognise that your energy levels are different from others, and to make allowances for this without necessarily spotlighting that you have a problem.

This can be managed by planning activities carefully so that there is rest/physio time in between.

Energy levels and degrees of wellness can be unpredictable, so plans may need to be changed at short notice. Whilst this may not be very palatable, it may be better to do this than to carry on anyway and make yourself worse so that you end up missing even more.

Being positive and living as normal and full a life as possible needs to be balanced against recognising your health needs and looking after yourself.

This balance constantly changes and needs to be carefully monitored to ensure that you get the very best out of life

Case Study

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.