Protect certain times to spend with siblings, sometimes put the needs of siblings first and let them choose what to do.

Siblings of children with chronic illness such as PCD, often feel that because of the additional care needs of their brother or sister, there is a lack of time for their needs. Everyday family activities may be limited as parents try to juggle the needs of all the children in the family and this can lead to more pressures at home.

It is important to take up offers of help friends and relatives who may be able to offer some special time for brothers or sisters, or include them in activities which they would otherwise miss out on.  It is also useful to have a relative/friend who can look after your child with PCD, including performing their physiotherapy and medical treatment, so that you can spend some time alone with your other children.

Many siblings have found it useful to join a local siblings group. Some of the benefits to siblings include meeting others in a similar position, sharing ideas about coping with difficult situations and having a good time.

A useful leaflet to download can be found by clicking this link

Case Study

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.