Rare Resources Focus Group – 30th Jan 2019, University Hospital Wales

Genetic Alliance are running a project named Rare Resources and looking for family in Wales who have received a diagnosis of a rare, genetic or undiagnosed condition to share their experience and help design an information toolkit for other families across Wales. PCD Family Support Group members are invited to come to the first Rare Resources focus group, taking place on the 30 January, 10:30 – 14:00, in the Main Hospital, University Hospital of Wales. To register and for more information please email contactus@geneticalliance.org.uk. Lunch will be provided.

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.