Rare Disease Day 2020

With only 5 weeks to go, Rare Disease Day 2020 is right around the corner! Celebrated on Saturday 29th February this year, Rare Disease Day aims to raise awareness amongst the general public about rare diseases and their impact on patients’ lives.

If you would like to take part in this year’s events, check out the official Rare Disease Day press release available online here or head to their website: rarediseaseday.org

There is a list of events happening in the UK on the Rare Disease Day website including a Rare Fillm Festival on 10th February!

Fundraising materials for the PCD Family Support Group are available on our website. Please get in touch if you would like any help or materials for your event.


Written by Katie Dexter on 25-01-2020

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.