Update Statement from the PCD National Leads
Please find an updated statement from the National Leads of the children and adult PCD centres in England: PCD statement for 17 November 2020
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News and Events
ERS Congress September 2020
Between 7-9th September of this year, Katie virtually attended the ERS Congress on our behalf. Read her summary here: ERSCongress.pdf
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Shielding Update 13-10-2020
Following Boris Johnson’s announcement yesterday we are now following a three-tier system. Check out this infographic for more details of what this means for those with PCD: SHIELDING AND PCD OCTOBER 2020
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Reminder! Book in your flu jab now!
It’s that time of year again when people with PCD need to get their flu vaccinations. This year it is especially important, and it is recommended that everyone in the household of someone with PCD, as well as close and regular contacts of those with PCD, get a flu jab. If you have general
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Call for participants: parents of children with PCD under 6 years of age
We are asking parents of children with PCD (younger than 6 years of age) to help us develop a Quality of Life Questionnaire. In the future we plan to do some studies to investigate different treatments in PCD. To see whether the treatments work, a Quality of Life Questionnaire will allow us to assess whether
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Back to School in Scotland
BACK TO SCHOOL IN SCOTLAND This month (August 2020), we spoke to several families in Scotland affected by PCD to get their view on returning to school. There was variation in approach. Everyone, however, said that they had talked through the issue with respiratory specialists including PCD nurses and physiotherapists. One family decided not
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PCD-Connect
At our virtual AGM this year, our new chair, Lucy Dixon, spoke about wanting to keep growing our PCD community so that more people with the condition can feel connected even despite the additional barriers that Covid-19 has posed. We were therefore thrilled when Dan Hawkins approached us about an idea called PCD-Connect, which is
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Q&A Transcript
PCD Day Q&A Session Transcript We are delighted to share the Q&A session held with our PCD specialists on 27th June at our AGM is now available for download here. This includes an update on facemasks and is accurate from 10/07/2020. As always, this advice is likely to change and evolve as the situation in
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Poster Competition 2020 Results!
PCD Poster Competition 2020 This year we held a competition to design an educational poster for people with PCD on one of these themes: 1) Washing your hands 2) The importance of physiotherapy and exercise 3) PCD and Me The committee were extremely impressed with the quality and amount of poster entries that we received
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PCD AGM and Q&A 2020
PCD AGM and Q&A – 27th June 2020 (online) Full video of our AGM is now available on YouTube: Strange times and saying goodbyes The 27th June 2020 was an unforgettable moment for the PCD Family Support Group for two reasons: Firstly, we bid farewell to our sensational chair of 17 years, Fiona Copeland.
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