Currently, PCD management guidelines are mostly based on research conducted on other respiratory conditions (such as cystic fibrosis) alongside expert opinion. To improve understanding of the condition and improve the outcomes and the quality of life for people with PCD, it is of the utmost importance that we design and carry out research with PCD patients.
All centres are involved in research and will offer their patients the chance to take part in clinical trials. You may also receive information about research via PCD Support UK. These may be local, national, or international studies. This information aims to answer your questions about research and to help you decide whether you want to be involved.