Get Involved in Research into Fatigue and PCD!

Is fatigue a symptom of your/your child’s lung condition? If so, The University of Liverpool is looking to talk to the following individuals:

  • Children and young adults (age 6 to 25) who have been diagnosed with PCD,
  • Parents/caregivers of children and young adults
  • Healthcare professionals who manage the treatment and management of PCD


The University of Liverpool wish to investigate the impact fatigue in areas such as education or social activities and how it is treated/managed. Additionally, for younger individuals, they wish to learn how they communicate their fatigue.

Head to their dedicated website:

If you are free to chat and/or require some information on this study, please email

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.