What is the chance we might have further children with PCD?

If neither parent has symptoms of PCD, there is a one in four chance at each conception of an incidence of PCD.  For more genetic information ask to be referred to a genetic counsellor.

Rajinder Kang, a physiotherapist who works within the Leicester PCD Paediatric Management Service has written a book to help explain the genetics for children. Red Shoe Story

This information from the Genetic Alliance may be useful.

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.