Genetic counselling can be sought from any specialist genetic centre, where advice can be sought for all family planning concerns.

Is there a test to see if my partner is a carrier for PCD?

Not at the moment. Researchers at University College London and around the world are working on it, watch this space!

At the moment when a child is born with PCD from parents with no symptoms of PCD it is assumed that they are both carriers. The gene that passes the PCD on is said to be ‘recessive’. The way two brown eyed parents can have a blue eyed child is also a recessive gene, they are able to carry the gene for blue eyes without having them themselves.

If you need further advice about genetic issues ask to be referred to a genetic counsellor. Further information about genetics can be found on the Genetic Alliance website.

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.