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Joint letter to the Prime Minister

Joint letter to the Prime Minister

On July 13, PCD Support UK co-signed the joint letter sent by National Voices to Prime Minister, Boris Johnson, asking him to urgently reconsider the decision to remove infection control measures. This is a worrying time for people with PCD and we...

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Research Opportunity Alert!

Research Opportunity Alert!

Although you may recognise her as our Chair, Lucy is studying a Masters in Social Research at the University of York. As part of her research, Lucy is looking for adult PCD patients (18+) in the UK, who are willing to have a 1-hour chat about their...

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PCD Family Support Group AGM and Q&A

PCD Family Support Group AGM and Q&A

You are warmly invited to our AGM and Q&A this Saturday 19th June, 10.30-12pm. Join us for this year’s AGM which celebrates 30 years of the PCD Family Support Group! We have some BIG announcements and are looking forward to catching you up on...

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Call for participants! Quality of life survey

Call for participants! Quality of life survey

Call for participants to complete an online survey.We would appreciate if parents of children with PCD (younger than 6 years of age) could help us with the development of a quality of life questionnaire. This involves completing this online survey....

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Get involved with research into fatigue and PCD!

Get involved with research into fatigue and PCD!

Is fatigue a symptom of your/your child’s lung condition? If so, The University of Liverpool is looking to talk to the following individuals: Children and young adults (aged 6 to 25) who have been diagnosed with PCDParents/caregivers of children and...

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