It is very important not to delay seeking advice or seeing your doctor if you are unwell. Firstly, you should make sure that you have a two week ‘rescue pack’ of antibiotics on hand, and you should start these if you think you are getting a chest infection or symptoms such as cold symptoms, flu-like symptoms, fever, or a new/worsening cough. You may also want to ask your GP to prepare you some pre-filled sputum testing forms and pots, so that you can send off a sputum sample as soon as you begin feeling unwell. It may be worth discussing with your GP whether there are changes to the sputum sample drop off system during this time.
As a high-risk group, those with PCD should make sure they are especially careful to manage their lung health at this time. If you think you are not managing an exacerbation, do not put off getting further advice or treatment because of concerns about COVID-19.
If you do develop any of the symptoms, you need to go to the NHS 111 website for advice as to whether testing for COVID-19 is required. Testing for COVID-19 is accessed via the NHS website not via your GP or your specialist hospital. After you have sought advice, please talk to your specialist hospital straight away, as you may require further treatment, such as a face-to-face consultation, an arranged admission or home IVs.