Get involved with research into fatigue and PCD!

Get involved with research into fatigue and PCD!

Home > Archives for May 2021

Get involved with research into fatigue and PCD!

Is fatigue a symptom of your/your child’s lung condition? If so, The University of Liverpool is looking to talk to the following individuals:

Children and young adults (aged 6 to 25) who have been diagnosed with PCD
Parents/caregivers of children and young adults
Healthcare professionals who manage the treatment and management of PCD

The University of Liverpool wish to investigate the impact fatigue in areas such as education or social activities and how it is treated/managed. Additionally, for younger individuals, they wish to learn how they communicate their fatigue.

Head to their dedicated website: www.fared-study.org.uk

If you are free to chat and/or require some information on this study, please email [email protected]

Events from the Brompton & Harefield Hospitals

Events from the Brompton & Harefield Hospitals

Home > Archives for May 2021

Events from the Brompton & Harefield Hospitals

We are delighted to share details of upcoming events open to members and patients of the Royal Brompton & Harefield Hospitals. Please remember to register in advance so that they can send you the link to join the webinar. Got questions? Please contact Nancy at [email protected]

Learn about the employment support available for people with long-term health conditions / disabilities

Hosted by Brompton Fountain

When?

Wednesday 26th May
5.00pm – 6:00pm
Online

Please note: this event is only open to patients of Royal Brompton and Harefield hospitals.

Webinar

Are you worried about finding employment or curious what support is available? Are you unsure whether to disclose your health condition to a potential employer? Do you want to find out about Disability Confident employers? Rabia Lemahieu, from Disability Rights UK, will be presenting and answering your questions about employment and access to work. This webinar is suitable for all ages, particularly teenagers and young adults entering employment. Parents are also welcome to attend.

The role of genetic testing in diagnosing health conditions

Online, Thursday 3rd June, 10:30 – 11:30am

This is a unique opportunity to join Dr Deborah Morris-Rosendahl, consultant clinical scientist and head of the Clinical Genetics and Genomics Laboratory, as she talks about the significant role genetic testing plays in diagnosing suspected inherited cardiac and respiratory conditions. As she and her team celebrate the milestone achievement of analysing 10,000 samples of DNA, Dr Morris-Rosendahl will also share how genetic testing has enabled clinical teams across Royal Brompton and Harefield to diagnose conditions such as cystic fibrosis and inherited arrthymias at an early stage, when treatment can be more effective.

Graft, grace and gratitude: encounters with the Royal Brompton Hospital archive

Online, Thursday, 10th June, 6:00 -7:00pm

Giskin Day

A Principal Teaching Fellow at Imperial College London where she leads on medical humanities, will talk about her experiences working with material from the historic archives of the Royal Brompton Hospital, and the findings of her research so far.

Questions

If you have any questions about these events or your membership, please contact Nancy at [email protected].