PCD Wellbeing Recruitment – Can you help?
All the information to participate in this short survey for research into the psychological wellbeing of patients with PCD is available here: PCD & Psychological Wellbeing Recruitment Poster
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Month: September 2019
The First PCD Clinical Interpretation Meeting
The first PCD Clinical Interpretation Panel meeting, which assembles together an expert national group for analysing PCD patient information from the 100,000 Genomes Project was held in University Hospital Southampton on 17th September 2019. Click here to download a summary of the meeting: PCD meeting notes for patients
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Grant awarded for research into upper airways disease in PCD
Myrofora Goutaki (twitter: @mgoutaki) has been awarded a Swiss National Science Foundation Ambizione grant to characterise and provide first evidence for the management of upper airways disease in patients with primary ciliary dyskinesia (PCD) in a large multi-national project. Almost all PCD patients suffer from upper respiratory symptoms (ear-nose-throat, ENT) that are often severe, yet
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