Month: January 2019

Genetic Alliance are running a project named Rare Resources and looking for family in Wales who have received a diagnosis of a rare, genetic or undiagnosed condition to share their experience and help design an information toolkit for other families across Wales. PCD Family Support Group members are invited to come to the first Rare

Chairman Fiona Copeland attended the 3rd BEAT-PCD Conference and 4th PCD Training School in Lisbon earlier this year. The report from the meeting can be found here.