The PCD Day Family Support Group attended the European Lung Foundation Patient Networking Day on September 15th 2018 in Paris, which was part of the wider European Respiratory Society 2018 Congress. The Patient Networking Day was focused on highlighting the different ways that patients can ensure their voices are heard when it comes to formulating
More Information
We had a great day at the PCD Family Day on Saturday, 22nd September 2018 held at the Studio Venue in Glasgow. We started with the day with Fiona Copeland explaining a little about the purpose of the PCD Family Support Group and introductions were made to the Scottish Committee who are raising awareness of
More Information
In collaboration with the PCD Family Support Group for Scotland, the MRC Human Genetics Unit and the University of Edinburgh are delighted to invite you to join us for a public-facing event to highlight primary ciliary dyskinesia (PCD) Awareness Month. PCD is one disease in a spectrum of rare genetic disorders, known as the ciliopathies,
More Information
Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.