Month: February 2016

Lucy Dixon joined other rare disease patients, their families, health experts and politicians for a second year running at the Welsh Assembly, to celebrate Rare Disease Day 2016. This day is held around the 29 February each year (note the rare date!) and brings together those working for and affected by rare diseases. There was

The Quality and Care Commission are asking regular users of the Royal Brompton Hospital to let them know what they think of the service they receive. It is important that as many of our patients respond as possible, as you will know this is one of our 4 major PCD centres in the UK. Please

Celebrating 25 years of the PCD Family Support Group Join us at Woburn Safari Park for our AGM and Family Day on Saturday, 4th June 2016 from 10 a.m. to 5 p.m. RSVP – Please sign up on Eventbrite by Friday, 20th May 2016 telling us who is coming as spaces are limited. If you