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Susanne’s German PCD/KS Support Group
Information in several languages including English
The Centre for PCD diagnosis and therapy in Pisa, Italy have an Italian language website about their work.
The P.C.D. Foundation is a support group for P.C.D. patients in the United States
The Brompton Fountain are a network of ‘Brompton Families’ who you can talk to by phone. As parents of children with cardiac or respiratory conditions, they will be on hand to offer support to others who are experiencing similar emotional and practical difficulties. Their aim is to provide a listening service so no parent feels alone.