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The standards for care document which is published by the European Respiratory Society is available to download from their website.
The PCD State of the Art which is published by the Archives of Diseases in Children is available to download from their website.
Detailed information on cilia, flagella and microtubules, their anatomy and function can be obtained at the CellBiology Web Page
To download Dr. Chris McManus’ research paper click below
Article on P.C.D. written by an American Paediatrician Dr. Girish Sharma in November 2002 – interesting details about drug treatments
For more information about Ear, Nose and Throat management please look at the website for E.N.T. UK
Simon Whalley and Chris McManus’ study into the ‘Living with PCD’ published in October 2006
The UK Pub Med Central website aims to make medical articles freely available to researchers. If you follow the link and enter “Primary Ciliary Dyskinesia” into the “search article” box it finds around 67 articles on the subject which can be viewed, downloaded etc.
A paper published in November 2006 Diagnosis of Common Variable Immunodeficiency in a Patient With Primary Ciliary Dyskinesia – interesting to note that other problems can sometimes be missed because the patient has been diagnosed with PCD
This paper was written for the Association of Paediatric Chartered Physiotherapists about Physiotherapy for PCD patients.