Make sure that the GP feels that it’s ok ‘not to know all the answers’ - the relationship then becomes 2 way.

If you have PCD you will become an ‘Expert Patient’ as you will most likely know more about PCD than your GP.

It is important that you have a good relationship with them and that they are aware of your current medical condition.

You will need to become proactive in your own or your child’s care, e.g. you may need to explain why you need another course of antibiotics and a minimum of a two week course. You will also need to explain what bugs you have recently grown and what they were treated with.

You will also need to ask for a sputum test so that antibiotics are targeted.

Give them PCD leaflets and recommend that they contact your hospital consultant for advice if required.

Case Study