We had a great day at the PCD Family Day on Saturday, 22nd September 2018 held at the Studio Venue in Glasgow.
We started with the day with Fiona Copeland explaining a little about the purpose of the PCD Family Support Group and introductions were made to the Scottish Committee who are raising awareness of PCD in Scotland to improve services for PCD patients in Scotland.
We had an action packed day which included a practical session on how to manage PCD on a daily basis and to help schools understand what care your child needs from Mum Katie Vance, Rajinder Kang (a specialist PCD Physiotherapist) who played her physio board game with our guests and read the Bug Story to the younger children, James Thompson showed us his 3D Cilia models, Amelia Shoemark gave us an update on the latest genetic research (including telling us about the latest gene found), Diane McTavish gave us an overview of healthy eating with PCD and de-mystified a few common myths about diet and Dr. Anirban Maitra gave an interesting talk about some of the PCD patients he has looked after and how each patient has a different care plan.
We also had a really good fun yoga session and the Genetics Lab from Glasgow University held structured activities for kids (word searches, pipettes & tubes, microscopes, life size chromosome, Velcro karyotype) as well as some back information for the adults/carers. The children also entered our design a t-shirt competition, watched films and played games together.
Thank you to Dorothy Holliday who has written a book with the proceeds going to our Charity and to Ewan Shanks (and expert saleswoman Mia) who sold his handmade crocheted scarves and hats.
We finished the day off with a Q&A session with our speakers plus local PCD experts.
We hope to hold a similar event next year but in the meantime if you want to help raise funds for the group and raise awareness of PCD in Scotland then please join us at the next Kiltwalk on 28th April 2019 in Glasgow. (Select PCD Family Support Group from the list of charities and then select ‘PCD Family Support Group’ in the Team Box).