Privacy Policy

At the PCD Family Support Group we are committed to protecting your privacy. All information we hold concerning you as an individual will be held and processed by the PCD Family Support Group strictly in accordance with the provisions of the Data Protection Act 1998.

Only data which has been voluntarily provided will be held and such data will only be used by the PCD Family Support Group to administer our relationship with you in connection with our charitable activities, aims and related purposes. We will not, without your consent, supply your name and address to any third party except where we are required to do so by law.

If you have indicated that you are interested in receiving regular information about the PCD Family Support Group’s services and activities, we will send you communications by post or electronically. In addition, we may send you direct mail that we feel may be of interest to you.

We do not sell or rent user information to anyone.

If you use our website and are asked for personal information at any point, you are only sharing that information with the PCD Family Support Group alone, unless otherwise stated. For example, when you are using our secure online donation pages you are going through our partner company JustGiving and the information you give, such as your credit card number and contact information, is provided so that the transaction can take place.

The PCD Family Support Group’s website, like many websites, uses cookies in order to provide a more personalized web service. Cookies are small text files stored by your browser on your computer or phone and they are used to make websites easier for visitors to use. They allow sites to store things like user preferences and gather anonymous data about how the site is used to help improve a visitor’s experience. Please note that no advertising cookies are used on this site and no cookie data is used for marketing purposes. You can refuse cookies but you may not be able to use all the interactive features of our website. For more information about cookies, please see

The accuracy of your information is important to us. If you change your address or believe any of the other information we hold concerning you is out of date, please contact us, or write to the PCD Family Support Group, addressing your letter to 15 Shuttleworth Grove, Wavendon Gate, Milton Keynes MK7 7RX.

As an individual, you have a right under the Data Protection Act 1998 to obtain information from us, including a description of the data that we hold on you. For more information about this please contact the Data Protection Compliance Officer at 15 Shuttleworth Grove, Wavendon Gate, Milton Keynes MK7 7RX.

We take every measure available to protect the confidentiality of our users. Your enquiry may appear on the site so the answers can help other people as well. In this eventuality, unless we receive your consent, any names or personal details will be changed to maintain confidentiality. Please remember that your computer stores copies of outgoing mail. To keep your message confidential from others who may use your computer delete the copy in your sent items folder and check that our address has not been stored in the address box on your computer. If you do not want to use your usual email address for the purposes of this query, you could choose a free web based Email address such as Hotmail, Yahoo or Gmail.


The information and advice found at the P.C.D. Family Support Group is NOT a substitute for the medical advice of your doctor who has specific knowledge of your medical condition. Visitors to this site should regularly consult doctors in all matters relating to their personal health.

Drugs and dosages mentioned herein may not be appropriate for your medical condition. Please consult your doctor.

The P.C.D. Family Support Group makes NO representations or warranties with respect to any information or products described on this site and shall NOT be liable for any direct, indirect, consequential, special or other damages arising from the use of such information or products.

All postings on the P.C.D. Family Support Group Discussion Board reflect only the opinion of those posting the messages and the P.C.D. Family Support Group shall NOT be liable for any direct, indirect, consequential, special or other damages arising from the posting of such messages.