The PCD Pediatric Management Service are really keen to hear about your experiences of the care you receive and find out what your ‘ideal PCD Service’ would look like. This is part of their commitment to continually improve the care that you receive and ensure that we are meeting your needs.
There are 2 separate surveys running, one for parents and carers of any children with PCD, and a second specially designed for a young person aged 12 and over with a diagnosis of PCD. If you are a parent or carer of more than one child with PCD please only complete the survey once, filling in any of the questions as they relate to any of your children with PCD.
The parent / carer survey should take about 20 minutes to complete (depending on how much you’d like to tell them). The young person’s survey should take between 5 to 10 minutes. If you are unable to complete the survey in one go and want to save it and resume the survey from where you finished, press the ‘save and quit’ button (in the top right hand corner of each section screen) you will then be given instructions on how to access and finish the survey at a later date.
To complete the ‘young person with PCD aged 12 and over’ survey please access the link here.
To complete the ‘parent / carer of a child with PCD’ survey please access the link here.