Medicine and Me: Living with Bronchiectasis 16th June 2017

medicine and me

 

On Friday, 16th June 2017 I was invited to speak at Medicine & Me: Living with Bronchiectasis, which was jointly organised by the Royal Society of Medicine, the British Lung Foundation and Bronch-UK in London. The event was really well attended and we were treated to a number of talks from experts in bronchiectasis from around the UK.

 

 

I focused on telling our story – how my little boys were diagnosed with bronchiectasis when they were aged six and four. I talked about how the diagnosis was difficult to get and how the they have had to adapt to doing physiotherapy twice a day and enduring lots of hospital stays when they were younger.

 

The take home points for me from the afternoon where that all patients with bronchiectasis should:-

 

  • Tell their ‘lung doctors’ about their other ailments as often they can help direct the doctor to correct treatment.

 

  • You should get your sputum checked when you are poorly but also post antibiotic treatment and at least once a year when are well.

 

  • You should continue to get their physiotherapy reviewed on a regular basis and to investigate whether pulmonary rehabilitation is an option.

    Fiona Speaking
    Fiona Copeland speaking

 

  • You should do physio twice a day even when feeling well. Ask your physio to show you how to do the ACBT techniques.

 

  • Make sure you have a self management plan from your doctor (useful to show GP) – which should include that you when you are prescribed antibiotics that they are of a high dose for a minimum of 14 days. If your doctor is reluctant to prescribe these then explain that these are in the management of bronchiectasis guidelines.

 

 

 

RSM Main entrance
RSM Main Entrance

 

Other help/ideas are available:-

 

 

 

 

 

Fiona Copeland

Chairman of PCD Family Support Group and Mum to two sons with PCD

19th June 2017