Fundraising by cycling 1800 km!

Dan and Darcy preparing to take on a self supported, 14 day, 1800km race through Kyrgyzstan for Primary Ciliary Dyskinesia. This trip is to raise awareness and money for the family support group for people affected by PCD.

Dan and Darcy plan to ride the Silk Road Mountain Race in August which is the perfect challenge. Participants are given 14 days to finish a route which takes them through mountains, gravel tracks and old abandoned soviet roads with little tarmac. The route follows part of the historical silk road, which travels over 4000m+ passes, boarders China and finishes in the fishing town of Balykchy on the shores of lake Issyk-Kul. Riders have to face extreme weather conditions riding through rain storms, snow storms and sunny spells, while carrying all their possessions and food.

They are aiming to raise £1 for every 1km of the race route – so if you have £1 spare, please help us reach their target of £1800!

Training has begun and you can follow the progress on Dan and Darcy’s Instagram page, where they plan to hold events in the lead up raising as much money and awareness as possible for the rare condition PCD.

Headin’ East Instagram page and their Just Giving page

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.