Statement from the PCD Centres 27th March 2020:-

 

Statement from the National leads of the children and adult PCD centres in England

Following discussions between all the National leads for the both the Children’s and Adult PCD centres we advise that:

All patients with PCD should be considered to be ‘extremely vulnerable’ and should therefore follow PHE guidelines for shielding (follow this link)

We are purposefully taking a cautious approach on this as your safety is our main concern. We will continue to monitor all the available international data on the pandemic and will update this advice as appropriate.

We are awaiting clarification regarding food and medicines assistance and will let you know once we have further information.

We appreciate this means that you will need to be isolated in your home and that this might limit your ability to undertake regular exercise.  If this is a major problem, please contact, the PCD Family Support Group who may be able to can provide funding for any equipment which might help e.g. trampolines. Please contact them on chair@pcdsupport.org.uk

The PCD Support Group is also planning activities (such as the Great Gappo entertaining our kids on Facebook live) and suggesting resources to entertain children on our website.

If you have any questions please contact your PCD centres.

We recognise that this is a challenging and concerning time and wish you all the best over the coming months.

The National PCD Leads

 

Activities during Shielding

We know that the idea of staying inside for at least 12 weeks is tough for most people. The PCD Family Support Group committee have been hard at work thinking of activities that will keep people of all ages entertained during this time! We have split these into types of activity and we hope there is something for everyone. If you have further ideas, get in touch via our social media channels or by emailing comms@pcdsupport.org.uk.

Click here for our dedicated activities page.

 

FAQs

Please check out our Covid-19 FAQs page for more information and resources.

 

 

Last Updated: 30th March 2020 @ 11:30 by Katie Dexter

Keeping ahead of COVID-19

Covid-19 is very unsettling for all of our PCD community – we will be regularly updating this page with latest information and ideas on how to keep yourselves entertained whilst self-isolating.