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Month: November 2019

23 Nov

Call for participants! Survery for Research

We would like your views on your PCD treatment and to understand how you cope with daily stressors and the support you have from friends and family. The survey takes 30-45 minutes to complete and questions ask about your wellbeing over the past 2 weeks. If you are 18 or over: for more information and

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23 Nov

Survey for Rare Disease – Deadline 29th Nov

Follow this link to find out more and take the survey – the deadline for responses is Friday 29 November.   In July, the Minister for rare disease at the Department for Health and Social Care, Baroness Blackwood, announced a ‘national conversation’ on rare disease. This conversation aims to gather a range of views from the rare

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Recent Posts

  • Call for participants! Survery for Research
  • Survey for Rare Disease – Deadline 29th Nov
  • Scottish PCD Day 2019
  • PCD Wellbeing Recruitment – Can you help?
  • The First PCD Clinical Interpretation Meeting

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©PCD Family Support Group 2019

Charity No. 1049931

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