Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment is chest physiotherapy and targeted antibiotics enabling individuals to lead normal lives. Any problems resulting from PCD vary from person to person.
We hope you find the site useful and welcome any comments or suggestions about it. Contact Us
PCD Day and AGM 1st July 2017
Our AGM And PCD Day will be held on Saturday, 1st July 2017 from 10.30 a.m. to 4.30 p.m. in a new venue at The Hilton Hotel, Timbold Dr, Kents Hill, Milton Keynes MK7 6HL We hold a number of talks throughout the day from PCD experts to learn more about PCD and also have
Medicine and Me: Living with Bronchiectasis 16th June 2017
Please join us on the 16th June 2017 at 12.30 at the Royal Society of Medicine to learn more about bronchiectasis. This meeting is free for patients, family members and carers to attend. The Medicine and Me series of meetings aim to update us all on important medical conditions and gives a direct voice to
Welsh Rare Disease Day Reception 2017
Background to the day Rare Disease Day Wales has become an important highlight of my calendar and this year’s event was no exception. In February each year Rare Disease UK organize receptions across Britain to highlight the importance of Rare Diseases to health professionals, politicians and patients alike. Rare Disease Day is officially celebrated on