Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment is chest physiotherapy and targeted antibiotics enabling individuals to lead normal lives. Any problems resulting from PCD vary from person to person.
We hope you find the site useful and welcome any comments or suggestions about it. Contact Us
Pulmonary Rehabilitation for Adults with PCD
If you have a lung condition, taking part in a pulmonary rehabilitation (PR) programme is the best way to learn how to exercise at the right level for you. This BLF booklet explains why it is important for you to exercise, how PR can help you to learn how to exercise and cope better with a
British Lung Foundation new Children’s Hub
The BLF have a new section on their website especially for children. Here you can read about your child’s lungs, the different lung conditions which affect children, and read the stories of people like you. There is also specific section on PCD and the story of our chairman Fiona Copeland’s sons.
PCD Day and AGM 1st July 2017
Our AGM And PCD Day will be held on Saturday, 1st July 2017 from 10.30 a.m. to 4.30 p.m. in a new venue at The Hilton Hotel, Timbold Dr, Kents Hill, Milton Keynes MK7 6HL We hold a number of talks throughout the day from PCD experts to learn more about PCD and also have