Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment is chest physiotherapy and targeted antibiotics enabling individuals to lead normal lives. Any problems resulting from PCD vary from person to person.
We hope you find the site useful and welcome any comments or suggestions about it. Contact Us
BEAT-PCD Conference and Training School – Lisbon 6th-9th February
I was invited to speak at the BEAT-PCD conference this year on how patient organisations can have an impact on driving patient services. The audience were keen to hear how our small group has managed to help secure funding from the NHS for PCD Diagnostic Services and for the management of PCD patients throughout their
Northern PCD Day 28th April 2018
Do you have PCD or look after someone with it? Would you like to meet other families living with PCD and learn more about the condition? If so, join us on 28th April 2018 at Eureka! in Halifax. The aim of the day is to learn more about PCD and meet other families to share
Kilt Walk 2017 Total Fundraising
On Sunday, 17th September 2017 a group of our PCD Scottish Group families walked the Wee Wander, 6 miles around Edinburgh. The Kilt Walk raises money for charities based in Scotland and any money the walkers raise is topped up with 40%. We are delighted that we have received £3,691.76 from this one event. Well