Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment is chest physiotherapy and targeted antibiotics enabling individuals to lead normal lives. Any problems resulting from PCD vary from person to person.
We hope you find the site useful and welcome any comments or suggestions about it. Contact Us
PCD AGM Day Ist July 2017
PCD Day / AGM Minutes- Hilton Hotel, Kents Hill, Milton Keynes 1/07/2017 Over 25 families and their children met at the Hilton Hotel, Kents Hill, Milton Keynes for PCD Day/AGM. Introduction: Introduction from Fiona about the PCD Family support group and the agenda for the day. Introduction by Fiona the of specialists / key
Medicine and Me: Living with Bronchiectasis 16th June 2017
On Friday, 16th June 2017 I was invited to speak at Medicine & Me: Living with Bronchiectasis, which was jointly organised by the Royal Society of Medicine, the British Lung Foundation and Bronch-UK in London. The event was really well attended and we were treated to a number of talks from experts in bronchiectasis
Could you be our next Treasurer?
After 11+ years our amazing Treasurer is resigning from his post. Would you like to help the PCD Family Support Group in this role? For more information click here Treasurer Advert 2017