Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment is chest physiotherapy and targeted antibiotics enabling individuals to lead normal lives. Any problems resulting from PCD vary from person to person.
We hope you find the site useful and welcome any comments or suggestions about it. Contact Us
Scottish PCD Day 13th May 2017
We are holding our first ever PCD Day in Scotland on Saturday, 13th May 2017 at the Venue Studios, 67 Hope Street, Glasgow G2 6AE from 10.30 a.m. to 4 p.m. This is an opportunity to learn more about PCD and meet other families affected by the condition. We hold a number of talks throughout
Consultation re closure of Congenital Heart Disease Service at Royal Brompton
Last week a 15 week public consultation was launched concerning NHS England’s planned decommissioning of Royal Brompton & Harefield NHS Foundation Trust’s (RBHT) Congenital Heart Disease (CHD) service. Why is NHS England planning to close these CHD services? The decision by NHS England to decommission CHD services at RBHT is because they believe that hospitals
Visit to Fruit Fly Research Lab
Two of our Scottish PCD Families visited the Centre for Integrative Physiology at the University of Edinburgh and had a very warm welcome by senior lecturing staff and some of their research teams (Dr. Thomas Theil investigating the molecular mechanisms that control cortical patterning and Professor Andrew Jarman studying the relatively simple nervous system of the