Welcome to our website which provides an up-to-date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves recurrent infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a ‘bronchiectasis’.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment for people with PCD is regular chest physiotherapy to clear secretions from the lungs and targeted antibiotics to treat infections. PCD can affect people in a variety of different ways, but when managed well, most with the condition lead relatively normal lives.
We hope you find this website useful and please do contact us if you have any comments or suggestions.
Shop on Amazon and support PCD at the same time!
We are pleased to let you know that you can now shop on AmazonSmile and support the PCD Family Support Group at the same time! With Black Friday deals running from the 16th to the 30th November this is a great opportunity to get some fantastic deals and support the charity at the same time!
New UK PCD Physiotherapy Guidelines
The ACPRC have just produced PCD Standards of Care for Physiotherapy a really useful resource for clinicians looking after PCD patients and our PCD Community. Thank you and well done to our PCD Physios Gemma Marsh, Lynne Schofield, Nicky Lloyd, Victoria Keenan, Hannah Wilkins and Rajinder Kang
Scottish PCD Awareness Day
We were delighted to attend the first Scottish PCD Awareness Day, hosted by Dr Pleasantine Mill and her team at The MRC Human Genetics Unit, University of Edinburgh on Monday, 29th October. It was a significant milestone for our PCD community as members of the Scottish committee, patients, families, clinical and research experts, met to