Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment is chest physiotherapy and targeted antibiotics enabling individuals to lead normal lives. Any problems resulting from PCD vary from person to person.
We hope you find the site useful and welcome any comments or suggestions about it. Contact Us
Kilt Walk 2017 Total Fundraising
On Sunday, 17th September 2017 a group of our PCD Scottish Group families walked the Wee Wander, 6 miles around Edinburgh. The Kilt Walk raises money for charities based in Scotland and any money the walkers raise is topped up with 40%. We are delighted that we have received £3,691.76 from this one event. Well
New Adult Management Service
PCD Family Support Group are absolutely delighted to announce the commissioning of an Adult PCD (Primary Ciliary Dyskinesia) Management Service from 1st April 2018. Thanks to the persistence, over many months, of our Chair Fiona Copeland who has lobbied extensively to secure this, the new service will follow on from the excellent PCD Diagnostic and
Dates for your 2018 Diaries
PCD Day and AGM 2018 will be held on Saturday, 30th June 2018 at The Hilton Hotel, Kents Hill, Milton Keynes more details here The Scottish PCD Day will be held on Saturday, 22nd September at The Studio Venue, Glasgow. More details to follow soon.