Welcome to our website which provides an up-to-date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves recurrent infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a ‘bronchiectasis’.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment for people with PCD is regular chest physiotherapy to clear secretions from the lungs and targeted antibiotics to treat infections. PCD can affect people in a variety of different ways, but when managed well, most with the condition leave relatively normal lives.
We hope you find this website useful and please do contact us if you have any comments or suggestions.
PCD AGM, 30th June 2018, Milton Keynes
The PCD Day and AGM in Milton Keynes was another fantastic event and a great opportunity for friends and families impacted by PCD to meet and network in an informal and enjoyable setting. The day began with a welcome from Fiona Copeland, Chairman of the PCD Family Support Group, and an introduction of the key
Scottish PCD Day 22nd September 2018 Glasgow
Please join us for our Scottish PCD Day on Saturday 22nd September 2018 at The Venue Studios, 67 Hope Street, Glasgow, G2 6AE. This is an opportunity to learn more about PCD and meet other families affected by the condition. We hold a number of talks throughout the day from PCD experts to learn more
Northern PCD Day, 28th April 2018, Halifax
This was a really successful and fun event, held at Eureka, the Children’s Museum, in Halifax. It provided an informal setting for people to meet others with PCD. Fiona Copeland, Chairman of the PCD Family Support Group, opened the meeting and thanked the Leeds team for organising the day. She encouraged the children to make