Welcome to our website which provides an up-to-date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves recurrent infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a ‘bronchiectasis’.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment for people with PCD is regular chest physiotherapy to clear secretions from the lungs and targeted antibiotics to treat infections. PCD can affect people in a variety of different ways, but when managed well, most with the condition lead relatively normal lives.
We hope you find this website useful and please do contact us if you have any comments or suggestions.
Scottish PCD Day – 5th October
Keep up-to-date with PCD by attending this year’s PCD Day in Scotland at Queen Elizabeth University Hospital on Saturday 5th October 2019. As well as showing your support for the PCD bid for Glasgow simply by attending, you’ll hear the latest research in cilia, bronchiectasis, male fertility as well as the psychological
Grant awarded for research into upper airways disease in PCD
Myrofora Goutaki (twitter: @mgoutaki) has been awarded a Swiss National Science Foundation Ambizione grant to characterise and provide first evidence for the management of upper airways disease in patients with primary ciliary dyskinesia (PCD) in a large multi-national project. Almost all PCD patients suffer from upper respiratory symptoms (ear-nose-throat, ENT) that are often severe, yet
RideLondon2019 – Thank you Charlotte!
A big thank you to Charlotte for completing RideLondon 2019 and raising a massive £300 for PCD Family Support Group UK! An amazing personal achievement! If you would like to donate or find out more, check out her justgiving page here: Charlotte’sRide100