Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories.
Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with the abnormality of cilia (microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD may affect the lungs, nose, sinuses, ears and fertility.
The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”.
Up to 50% of patients with PCD also have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal).
The mainstay of treatment is chest physiotherapy and targeted antibiotics enabling individuals to lead normal lives. Any problems resulting from PCD vary from person to person.
We hope you find the site useful and welcome any comments or suggestions about it. Contact Us
Join us on the Kilt Walk, Edinburgh – Saturday, 17th September 2017
Following on from the success of our recent Scottish PCD Day we are keen to keep the momentum up re raising awareness of PCD in Scotland as well as raising funds. We would love to get as many as possible to do the Wee Wander as part of the Edinburgh Kilt Walk on Sunday, 17th
We are still looking for a new treasurer – could you help?
Our amazing Treasurer has resigned after 12+ years in the post. Would you be able to help the PCD Family Support Group in this role? For more information click here Treasurer Advert 2017
PCD AGM Day Ist July 2017
PCD Day / AGM Minutes- Hilton Hotel, Kents Hill, Milton Keynes 1/07/2017 Over 25 families and their children met at the Hilton Hotel, Kents Hill, Milton Keynes for PCD Day/AGM. Introduction: Introduction from Fiona about the PCD Family support group and the agenda for the day. Introduction by Fiona the of specialists / key